Empowering Patients at Home: Co-Designing a PICC Booklet

Study Overview

This study focused on the co-design and evaluation of an educational booklet titled “Living Well With a PICC at Home”, aimed at improving home-based care and management for patients with peripherally inserted central catheters (PICCs).

Through participatory design, patients, caregivers, and healthcare professionals collaborated to develop content that reflects real-world needs, ensuring relevance and accessibility.

Key Findings

• The booklet was co-developed with patients and clinicians, integrating lived experience with clinical best practices.
• It provided easy-to-understand guidance on PICC care, maintenance, and troubleshooting.
• Evaluation results showed that participants found the resource clear, helpful, and confidence-building in managing PICC care at home.
• The study emphasized the importance of user-centered design in healthcare education to enhance patient safety and reduce hospital readmissions.

Implications

By empowering patients with clear, co-created educational tools, healthcare providers can bridge the knowledge gap between clinical settings and home care—improving outcomes and promoting independence for patients living with a PICC.

Read more:https://onlinelibrary.wiley.com/doi/10.1111/jan.70146 

Authors: Rebecca Sharp, Qunyan Xu, Robyn Pumpa, Nadia Corsini, Julie Marker, Jodie Altschwager, Alanna Ortmann, Lisa Turner, Lili Jin, Amanda Ullman, Adrian Esterman